Living with Neurofibromatosis Kirsty Ashton MBE 9781785071133 Books
Download As PDF : Living with Neurofibromatosis Kirsty Ashton MBE 9781785071133 Books
I hope that by writing my second book about living with neurofibromatosis (NF) and by including the stories from other people who suffer from NF, it will help to give a better understanding of how differently people are affected by this cruel condition. The condition does not only affect the person who has the condition but their families too.
The book provides my continued diary of how I cope with living with Neurofibromatosis. Like my first book (Kirsty's story living with Neurofibromatosis and Scoliosis) this book contains a Glossary of the medical terms used in the book, information from some of my doctors and from other people who are involved in my medical care.
I believe in making the most of what life has given me, I can't change the past, but hopefully I can try and make my future go my way.
My Neurofibromatosis caused me no problems until I was eight years old when my life changed forever. I was also diagnosed with scoliosis at this time. I now live a very different, but full life, where my family and a large group of friends support me, some of whom have made a contribution to this book with their own thoughts.
I can no longer do some of the things that I loved to do; I had to give it all up due to being in so much pain. My diary tells how and why my life changed due to the problems caused by Neurofibromatosis and Scoliosis.
I love to help others and NF and Scoliosis has made me the person I am today.
Living with Neurofibromatosis Kirsty Ashton MBE 9781785071133 Books
I loved all the stories of people who suffer from NF. Since I too have NF everything that others stated fit me to a tee. All NF people have so much in common and we all suffer in so many different ways. The one thing I did take note of is how so many of us had a hard time in school.I also really enjoyed learning more about Kristy and her battle with NF. She did a great job writing her second book. Kristy has such a big heart and is such a wonderful young woman. Hope there will be a third book. I would love to follow Kristy and her journey with NF.
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Living with Neurofibromatosis Kirsty Ashton MBE 9781785071133 Books Reviews
Very interesting. Hard to put down after I got started.
This book is an interesting read for anyone who suffers from NF or for a loved one who is caring for someone with NF. Lots a good information, which I'm sure you would find helpful. It was nice to see that doctors had taken the time to write something for the book.
Found it difficult to put the book down until I finished the book.
i have Nf and this book is great my story is in there it was exactly what i wrote
I loved all the stories of people who suffer from NF. Since I too have NF everything that others stated fit me to a tee. All NF people have so much in common and we all suffer in so many different ways. The one thing I did take note of is how so many of us had a hard time in school.
I also really enjoyed learning more about Kristy and her battle with NF. She did a great job writing her second book. Kristy has such a big heart and is such a wonderful young woman. Hope there will be a third book. I would love to follow Kristy and her journey with NF.
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